• silent_water [she/her]@hexbear.net
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    1 year ago

    I’m not in quite as bad shape but I also reacted badly to the vaccine. I get awful migraines after every shot/covid exposure lasting months and it’s become permanent since the last one. I quite literally have not had a single day free from migraines in 6 months and I’m completely intractable to every medication we’ve tried. like they’re talking about burning out various nerves in my face and neck to try and prevent them but it feels hopeless. I no longer get to have a social life and I’m struggling to keep a wfh job - I’m effectively bedridden all the time because of the side effects of migraines (dizziness, vertigo, muscle weakness, primarily), and I’ve been getting seizures for the past year.

    I wish people would just do the bare minimum to protect people like us but I’ve mostly given up. just trying to get used to my new, extremely small world.

    • cubedsteaks@lemmy.today
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      1 year ago

      you mentioned burning nerves in your face but have you looked into botox for migraines? they inject in the back of your neck. Or maybe doctors already suggested this for you? I understand they only use it for very severe migraines.